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HAEi supports this Shire initiative, as well as all bona fide research directed at improving the lives of patients.

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HAEi supports this Shire initiative, as well as all bona fide research directed at improving the lives of patients.

Me, Not HAE

A Survey of HAE Patients & Caregivers

Me, Not HAE is a global campaign from Shire aimed at raising awareness of the realities of living with Hereditary Angioedema (HAE), a rare genetic condition that may include unpredictable swelling in the extremities, face, abdomen, and throat.1
We’d like to invite you to participate in a survey that has been developed by Shire to better understand the psychosocial impact the disease has on the daily lives of patients and caregivers. The results of the survey will help us support HAE patients.

Me, Not HAE

A Survey of HAE Patients & Caregivers

Me, Not HAE is a global campaign from Shire aimed at raising awareness of the realities of living with Hereditary Angioedema (HAE), a rare genetic condition that may include unpredictable swelling in the extremities, face, abdomen, and throat.1
We’d like to invite you to participate in a survey that has been developed by Shire to better understand the psychosocial impact the disease has on the daily lives of patients and caregivers. The results of the survey will help us support HAE patients.
Take the Survey

The survey should take no longer than 15-20 minutes to complete

Is this survey for you?

Some of the questions are applicable for both HAE patients and caregivers and some will be specific depending whether you are a HAE patient or a caregiver. Please only complete the sections that are applicable to you.

Before you decide whether you want to take part, it is important for you to understand why the survey is being done and what your participation will involve.

Please read the following information carefully:

The survey is being funded by Shire and has been developed with support from the HAEi, who supports all bona fide research directed at improving the lives of patients

The survey is anonymous

You are free to withdraw at any time and no data will be recorded. Upon completing the survey, data will be collected anonymously

We are under obligation to anonymously report any treatment-related adverse events (AE’s) to Global Pharmacovigilance (globalpharmacovigilance@shire.com) should they be mentioned within this survey. Note that this survey does not ask any questions related to treatment. Always consult a healthcare professional if you have health-related concerns

You must be aged 18 years or older to participate in this survey

1 Zuraw BL. Hereditary angioedema. N Engl J Med. 2008;359(10):1027-36.

INTSP/C-ANPROM/HAE/16/0010     S12744
May 2016

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1 Zuraw BL. Hereditary angioedema. N Engl J Med. 2008;359(10):1027-36.

INTSP/C-ANPROM/HAE/16/0010     S12744
May 2016